October 16th, 2016
$25 per person
Free for children under 12
Preston Beach Park, Atlantic Ave, Swampscott, MA
Starting line at Preston Beach Park. Proceed down Atlantic Ave. Take left onto Puritan Rd. Take left onto Winshaw Rd/Gale Rd. and follow to its end. Take right onto Puritan Rd. Take right onto Atlantic Ave and proceed to finish line at Preston Beach Park.
Starting line at Preston Beach Park. Proceed down Atlantic Ave towards Swampscott. Take left onto Blodgett to its end and return in the same direction.
With our event now entering a new decade, Miles for Kyle celebrates what began as a family organized effort to rally support for our son, Kyle. Now 11, Kyle continues to amaze and inspire everyone he meets. Our event continues to evolve and this year is no exception. With ever-present concern for Kyle while he sleeps, our family added Ellie, an Australian Labradoodle. Our goal is to train Ellie to alert us if Kyle were to suffer a seizure at night and also serve as visual assistance on his left due to the hemianopsia resulting from his surgery. In researching the benefits of seizure alert dogs, we realized the significant financial burden in purchasing and training these animals.
With this in mind, this year, we are donating all of the funds/proceeds to the Chelsea Hutchison Foundation. This organization was founded as a result of the Hutchison family losing their daughter Chelsea after having a seizure in her sleep. SUDEP is the sudden, unexpected death of someone with epilepsy, who was otherwise healthy. Each year, more than 1 out 1,000 people with epilepsy dies from SUDEP. If seizures are uncontrolled, the risk of SUDEP increases to more than 1 out of 150. This organization exists to raise awareness of SUDEP and also to provide grants for helping families obtain seizure response dogs to assist in keeping their family members safe. Our goal is to raise funds to assist in the placement of one animal per year.
Once considered a last resort, epilepsy surgery has become a very safe and effective treatment for certain pediatric patients in whom medications/diet have proven to be ineffective. This highly specialized surgery involves the safe removal of an area of the brain, which is giving rise to seizures
The American Academy of Neurology now recommends this procedure for children over the age of 12 years old that have partial seizures that do not respond to medication and who are not appropriate candidates for epilepsy surgery. Stimulation of the vague nerve may reduce seizures by up to 50% in about half of patients who undergo this procedure.
Response dogs provide vital support to patients with epilepsy such as calling or alerting for help, bringing emergency medicine to the patient and bracing a fall.