October 16th, 2016
$20 per person
Free for children under 12
Preston Beach Park, Atlantic Ave, Swampscott, MA
Starting line at Preston Beach Park. Proceed down Atlantic Ave. Take left onto Puritan Rd. Take left onto Winshaw Rd/Gale Rd. and follow to its end. Take right onto Puritan Rd. Take right onto Atlantic Ave and proceed to finish line at Preston Beach Park.
Starting line at Preston Beach Park. Proceed down Atlantic Ave towards Swampscott. Take left onto Blodgett to its end and return in the same direction.
We are now celebrating the 11th year of the Miles for Kyle Run/Walk for Pediatric Epilepsy. What started as an effort to rally support, strength, and assistance for their 5 month old family member struggling with Pediatric Epilepsy has evolved over the past 11 years into a fundraising and awareness effort to assist and inform families of surgical options and availability around the country as they struggle with their own battles against this terrible disease.
Since Kyle's surgery in May of 2007 with Dr. William Bingaman of the Children's Hospital at the Cleveland Clinic, he has suffered only 2 seizures and has not had any in the past 7 years. Kyle is entering the 4th grade at the Stanley School and continues to develop and learn at an amazing rate. He also played baseball again this year with the Swampscott Little League. He is always listening to music and is even taking piano lessons, having his first recital last spring. He continues to amaze his family and is an inspiration to us all.
Infantile spasm (IS) is a specific type of seizure seen in an epilepsy syndrome of infancy and early childhood. The onset is predominantly in the first year of life, typically between 3-6 months. The typical pattern of IS is a sudden bending forward and stiffening of the body, arms, and legs; although there can also be arching of the torso. Spasms tend to begin soon after arousal from sleep. Individual spasms typically last for 1 to 5 seconds and occur in clusters, ranging from 2 to 100 spasms at a time. Infants may have dozens of clusters and several hundred spasms per day. Infantile spasms usually stop by age 5, but are often replaced by other seizure types.
Treatment with corticosteroids such as ACTH (adrenocorticotrophic hormone) and prednisone is standard, despite the risk of serious side effects. Newer antiepileptic medications, such as vigabatrin (which has recently received US FDA approval) have shown some efficacy.